Leading-Edge Care for Adult Congenital Heart Disease

At the Adult Congenital Heart Disease Center, our multidisciplinary team offers a full spectrum of specialized care for adults with congenital heart disease.

Our newly expanded program is a partnership between the heart experts at University Hospitals Rainbow Babies & Children’s Hospital’s Congenital Heart Collaborative and UH Harrington Heart & Vascular Institute  and provides seamless care for congenital heart disease patients throughout their lifetime.

More Adults Living with Congenital Heart Disease

Congenital heart defects are the most common birth defects in the U.S., affecting nearly 1 percent of all babies born. Due to advancements in cardiology and cardiac therapies, we now estimate that more than 90 percent of these babies survive into adulthood. Because of their improved survival, there are now more adults with congenital heart disease than children. In fact, it is estimated that there are 1.4 million patients in the U.S. with some form of congenital heart disease, and in the next few years this number will increase.

A Lifetime of Specialized Care

Most patients with adult congenital heart disease (ACHD) underwent repair during infancy or childhood. But it's important to remember that even with successful surgery early in life, adults with congenital heart disease still need continued monitoring throughout their life. Patients with ACHD are at increased risk of developing abnormal heart rhythms (arrhythmias), narrowing or leaky valves, pulmonary hypertension and heart failure. They also may develop additional medical and psychological issues that require care from specialists outside of cardiology.

At the Adult Congenital Heart Disease Center, our newly expanded team include specialists who are board-certified in adult congenital heart disease. This means they are specially trained in the comprehensive care of ACHD and understand the effects it can have on all aspects of a patient’s health. Because our team has expertise in treating both pediatric and adult heart conditions, we have the experience to treat issues arising from the original heart defect as well as any related conditions patients acquire as adults.

Comprehensive Care

The Adult Congenital Heart Disease Center is a collaboration between adult, children's and women’s health experts who are dedicated to providing the best care possible. Our team include:

  • Congenital heart surgeons
  • Interventional cardiologists
  • Cardiac imaging experts
  • Electrophysiologists
  • Cardiac anesthesiologists
  • Heart failure experts
  • Pulmonary hypertension experts
  • Maternal fetal medicine specialists

The collaboration and harmony between the pediatric and adult caregivers helps manage these patients and facilitate a seamless transition into the adult world. This smooth transition is essential in closing medical care gaps that can arise if pediatric patients discontinue follow-up care once they become adults. Very few congenital heart disease programs in the country have this capability.

Our adult congenital heart disease team is not only committed to providing comprehensive patient-centered care but also offers education to our patients and their caregivers. As an adult survivor, we understand your challenges and success stories, and we are committed to improving your quality of life and long-term survival. ACHD services are available and easily reachable 24/7 to answer any of your questions or concerns.

Our Services

Services at the Adult Congenital Heart Disease Center include: